Many were younger and, until they got sick, healthier than the average covid patient. By early May it was apparent that roughly 10% of these non-hospitalized patients weren’t getting better, he said. Younger and SickerĪ year ago, when the novel coronavirus was surging through New York, Mount Sinai Health System created an app to monitor covid patients at home, said David Putrino, the system’s director of rehabilitation innovation. The new research will bolster the growing number of studies that have already been published. In February, the National Institutes of Health announced a $1.15 billion, four-year initiative to study the causes and prevention of long covid. Some people’s symptoms drag on for months after their acute infection, while others’ symptoms ebb and flow on a “corona coaster” of relapse and recovery. Many young, previously healthy people who had a mild initial infection are battling long covid. Having been hospitalized or placed on a ventilator isn’t a reliable sign that someone will develop the condition. Studies have documented hundreds of lingering problems, but intense fatigue chest pain memory and concentration problems, often referred to as “brain fog” shortness of breath and a loss of taste and smell are common. There is no typical covid “long hauler.” After an infection, some people’s initial symptoms don’t abate, while other people develop entirely new symptoms that may affect multiple organs and systems. “Having something that we can use to define a case is critical” for tracking how many people get it and how well they do, and to establish research criteria for clinical trials. John Brooks, chief medical officer for the Centers for Disease Control and Prevention’s covid response. “There’s no single sign or lab test that can distinguish this syndrome from something else,” said Dr. “I want to get better.”īut to public health experts, medical researchers and health care providers, understanding the causes, risk factors and spectrum of symptoms is vital. “I don’t care if it’s covid or some other illness,” Wu said. When seeking help, “you’re basically a guinea pig at this point.”įor people suffering with lingering, debilitating symptoms months after a bout with covid, pinning down a definition for long covid may seem pointless. “There’s no actual treatment,” she said, for people experiencing these lasting symptoms, often referred to as long covid. Wu has struggled to get help from doctors, even those who take her symptoms seriously. And, she said, its aftereffects continue to plague her. Wu, of San Carlos, California, believes she had covid - although, like many others who were unable to get tested early in the pandemic, she never got an official diagnosis. But later she developed those symptoms, along with difficulty breathing, fatigue and neurological issues. Wu, 38, didn’t have a fever, cough or sore throat - the symptoms most associated with covid-19 at the time - so doctors at the hospital told her she was having a panic attack. Remembering how to dial 9-1-1 took “quite a bit of time,” she recalled recently. She didn’t recognize friends’ names in her list of phone contacts. One night in March 2020, Joy Wu felt like her heart was going to explode.
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